By the time Matthew was 18 months and still crying a lot, not being able to do a lot of physical things (running, walking up steps, climbing, unstable walking, not really using a fork or spoon well) and wasn't speaking AT ALL I starting wondering if something was going on. So naturally I went to his doctor and voiced my concerns. He told me he was fine, a happy healthy little boy. He said, "he's just a boy. Most boys talk later in life. He is a more serious child, he is just taking it all in. And we can't really do anything until after he's 2 anyway, so we'll reevaluate at 2 years old." I felt like I wasn't being listened to. I felt like I was being treated like a first time paranoid mom. And I told him, "I have 2 other kids I'm not being paranoid, I can tell there is something not right." But he said to just wait and see what the next 6 months brought.
|Matthew has to have things "just so" and likes to line things up|
By November of that same year we got him in for an evaluation for a Developmental and Behavioral Pediatrician (started the paperwork on that the March of that year, our original appointment was for January, but got in on a cancellation). The doctor was 3 hours away, but we felt it was totally worth it. They evaluated him for about 2 hours (which was recorded for them to review) and I also had to fill out a huge amount of paperwork of his history. Then we met with the doctor. She said okay we are going to have a team get together and review his history and evaluation. What are you looking to achieve from all this? I told her, " I want you to tell me what is going on with my son! I want you to tell me something other than, 'He is really interesting' ". So we left and had an appointment to come back a week later for another meeting. When we came back together the doctor said, "now I know that you don't want to heard this, but 'Matthew is very interesting' but we are putting him on the Autism Spectrum. He is on the "highly functioning" side. And he also has a severe speech disorder." She then provided us with a whole bunch of resources and goals that she would like to see him achieve (i.e. peer play vs. parallel play). We left the appointment feeling a little bit better, at least we has some answers, but does all this mean for our family and most especially for Matthew?
|Matthew around the age he got diagnosed.|
I will continue Matthew's story on another post, but that is how we came to getting Matthew diagnosed with Autism. It was a long and stressful road. Since then it hasn't been a basket of roses but it has helped a lot with having some answers so that we could move forward and help Matthew be the most successful he can be in this life.